| Resources
Here are some valuable resources for information about topics in my book. I've divided the sections into Brain Injury, Family Caregivers, Veteran's Issues, Parkinson's Disease, and Dementia. There is also a section describing books I've read and found particularly helpful. One of the best tips I followed was not to lock myself in to one diagnosis when looking for information. Think about the problem you are dealing with, perhaps memory loss or relationship issues. Then look up the organizations that often help with that problem, rather than trying to find everything you need in one category.
Please scroll down to reach the section that interests you. I'm always looking for good resources, so please pass along your favorites to me in the "Contact" section.
Thank you!
Brain Injury
Brain Injury Association of America- Information and links to 40 chartered state affiliates.
http://www.biausa.org
Tel: 703-761-0750
National Institute of Neurological Trauma and Stroke
http://www.ninds.nih.gov/
Brain Trauma Foundation
http://www.braintrauma.org/
Tel: 212-772-0608
National Rehabilitation Information Center
http://www.naric.com/
Tel: 800-346-2742 or 301-459-5900
Brainline: A new, national, multimedia program offering information and resources about prevention, treatment, and living with TBI.
http://www.brainline.org/
Lash and Associates Publishers
http://wwwlapublsihing,com
Lash has every form of printed information about brain injury. Excellent educational materials. Sign up for their newsletter blog.
The Brain Injury Network
http://www.braininjurynetwork.org/
Survivor operated non-profit advocacy organization for acquired brain injury survivors.
Dementia and Alzheimer's Disease
Alzheimer's Association
http://www.alz.org/
Tel: 800-272-3900
Alzheimer's Foundation of America
http://www.alzfdn.org/
Tel: 866-232-8484
National Institute of Mental Health
http://www.nimh.nih.gov/
Dementia Advocacy and Support Network International
http://www.dasninternational.org/
National Hospice and Palliative Care Organization
http://www.nhpco.org/
Tel: 800-658-8893
Family Caregiver Issues
National Family Caregiver Association: Supports, empowers, and advocates for all caregivers.
http://www.nfcacares.org/
Tel: 800-896-3650; 301-942-6430
The Well Spouse AssociationTM: Advocates for and addresses the needs of individuals caring for a chronically ill or disabled spouse/partner.
http://www.wellspouse.org/
Tel: 800-838-0874; 732-577-8899
Family Caregiver Alliance: A public voice for caregivers offers information, education, services, research, and advocacy programs.
http://www.caregiver.org/
Veterans Issues
Defense and Veterans Brain Injury Center
Walter Reed Army Medical Center
6900 Georgia Avenue NW
Tel: 800-870-9244
http://www.dvbic.org/
ReMind: A Bob Woodruff Foundation movement to provide resources and support to service men, veterans, and family members to successfully reintegrate into their communities.
http://www.remind.org/
Parkinson's Disease
American Parkinson's Disease Association, Inc.: Research, education, and support.
Tel: 1-800-223-2732
www.apda@apdaparkinson.com
National Parkinson Foundation, Inc.
Tel: 1-800-327-4545
http://www.parkinson.org/
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